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CMS recently announced that they will remove questions related to pain from the hospital consumer assessment of healthcare providers and systems (HCAHPS), commonly known as the patient satisfaction survey. This means that hospitals can continue to use the questions to survey patients about their inpatient pain management experience, but these questions would not affect the level of payment hospitals receive. This is a big victory for patients and the house of medicine.

 

The backstory

Here is the story behind the announcement. I, along with several leaders in the prescription drug abuse epidemic, have been advocating for this for the past 4 years. We said that patient satisfaction scores are a barrier to safe prescribing. How can you tell a patient, “No, I can’t give you more pain medication,” when you realize they are going to complain, take it to administration, report you to the medical board, give you bad Yelp reviews, and give you bad patient satisfaction scores. It is much easier to say ‘Yes’ than to say ‘No’. CMS is currently using these scores for hospitals but next in line are emergency physicians, followed by the rest of the medical community.

For the past 4 years, I have talked about the problem with the satisfaction scores. Some of the stories that explain the problem include a hospital CEO who threatened an emergency medicine group that if they don’t improve their patient satisfaction scores, their contract would be in jeopardy and their jobs on the line. They were not told to prescribe more drugs, they were told, “get your scores up, I don’t care how.” A medical director of a primary care group, who is very proud of their high scores, admitted that they follow safe prescribing guidelines but some physicians don’t, and explain that patient satisfaction is a higher priority. A survey of medical directors at 20 different hospitals stated that most agreed that patient satisfaction scores are a barrier to saying no to patients who were demanding drugs.

My own experience is of a patient who threatened to get me fired for not refilling his pain medications from the emergency department. He said he got other doctors fired and he vowed to do the same to me. Sure enough, he sent a letter claiming unprofessionalism, rude behavior, and “I’ve never been treated this way before.” My reply was I would rather have a patient blackmail me, threaten me, and give me bad patient satisfaction scores than have a dead patient. Was the hospital going to promote patient satisfaction scores over compassionate safe prescribing?

 

The tyranny of bad data

The issue of satisfaction scores is an emotional subject for many physicians. When I speak about it at conferences, there is outrage how something so unscientific can be used against them. Such data would never be allowed in any medical journal but is used to grade our performance and given the highest importance.

In January of this year, CMS held a webinar to address this concern. They specifically stated that,

“HCAHPS is designed and validated only for INTER hospital comparison, not comparison of wards, staff, etc. HCAHPS questions are not tailored for individual physicians, nurses, or other staff. CMS strongly opposes use of the HCAHPS Survey to identify individual providers.”

But when hospital administrators were shown this information, they said the webinar is not going to change anything. When $2 million a year is at stake due to HCAHPS scores, physicians will continue to get individual scores on a regular basis. How else can they improve the scores?

 

Advocacy matters

I am very proud of our advocacy efforts. I was told that CMS would never change. Measuring the patient experience is part of the Affordable Care Act. The ACA requires measuring the patient experience, although there is no mandate to link money to the scores. The AMA, CMA, and ACEP stated that this battle has been lost. But people were dying, and government needed to do their share in fighting the epidemic.

I spoke to the director of the National Drug Control Policy of Senator Diane Feinstein’s office, Director Michael Botticelli, and leaders at CDC. I wrote resolutions that were passed by CMA and ACEP to oppose financial incentives on satisfaction scores that were not evidence-based. And most importantly, I gained support of the parent community that is behind the fight of the opioid epidemic.

The parents who have lost sons and daughters to prescription drugs are similar to the Mothers Against Drug Driving. They have a strong voice. They were outraged that a doctors pay can be linked to how happy their patients are. They would much rather have their son or daughter angry at the doctor for denying a prescription and be alive today.

We are fighting an epidemic where we need to change medical culture. Seventy-eight Americans die every day from an accidental opioid overdose. We need to undo the past 10 years of medical education where physicians were told they were undertreating pain and needed to prescribe more. It is very hard to RE-educate. It is even harder if there is money involved that can push the wrong decision.

Being a physician is more like being a parent rather than customer service at Nordstrom’s. Sometimes the best parent is the one who says no and is strict rather than being permissive. Can you imagine giving your teenagers apparent satisfaction scores after you discipline them for being caught drinking alcohol or something else?

Thank you to all the advocates in the medical and parent community who helped make remove the satisfaction score barrier from safe prescribing.

Roneet Lev, MD
For 22 years, Dr. Roneet Lev has been (and still is) practicing as a full-time emergency physician at Scripps Mercy Hospital in San Diego. She also serves as the Chief for the Emergency Department. She graduated from the University of Texas Medical school in San Antonio, and an emergency medicine residency program at UCSD. Dr. Lev served as President of the California Chapter of the American College of Emergency Physicians from 2000 to 2001, and is President of IEPC, Independent Emergency Physicians Consortium, an organization providing collaboration and services to over 30 independent emergency departments in California. In October 2012, she established the San Diego and Imperial County Prescription Drug Abuse Medical Task Force with the goal of reducing deaths and mortality from prescription drugs. Her vision is to unite the medical community in changing the culture of over prescribing. She uses data to drive change for improved prescribing habits. This includes comparison of medical examiner prescription related deaths and CURES reports. She is passionate about this subject and is willing to assist any county or medical practice who wants to work on Safe Prescribing and decrease prescription drug abuse.

3 COMMENTS

  1. I read your article with great interest, as so many of my friends that were taking pain meds are now being denied medication. Severe arthritis, orthopedic issues, fibromyalgia, etc etc. So, you are saying that the 68-year-old woman who suffers from an illness that goes hand and hand with pain, is now going to be treated like a teenager and denied the very medication that allows her to go up and down the stairs, (to take care of her Alzheimer’s diagnosed husband). And that which keeps her husband at home, is not going to be allowed proper pain meds? Because teenagers are abusing their drugs? Really? There should be a better way of dispensing pain meds to teens.

    Many women I know are now buying their pain meds on the street, so to speak, because they are screaming with pain or laying in the fetal position begging god to take them. Women in pain, still get up, and get their children off to school and run a batch of laundry, and make sure the children have food. Even if they are doubled over in pain and are shaking all over. I’m not talking about one woman or two or three. I’m connected to groups that help support each other with love prayers and advice as to what to do next. There are dozens of these types of groups and the stories are all very similar. Pain meds abruptly stopped, with no ramping down or any other drugs to get them through withdrawal. What is happening are crimes against humanity, and I believe that, in the end, this new experiment will fail.

    I’m truly sorry for the parents that have lost a child. It’s heart breaking. Dr’s are using the “one policy fits all” brush and it is not working. And there are many more like me, retired, on Medicare/supplements that find this whole experiment unacceptable. I for one will be discussing this at length with those I’m in contact with that are suffering and formulate a better plan that does not leave people that do not abuse their drugs an avenue to proper pain control. A local medical clinic has taken a “no pain meds” policy, and they don’t even provide a referral to Dr’s/specialist that could help them with pain management. On top of that, the local clinic has a sign posted that they are doing drug testing at their descretion. I’ve already told them I will not supply them with a urine sample, ever.

    Several women in my support group online have tried to commit suiside, several more have succeeded. Really, this is part of the experiment that you think is ok? I have to drive to another state to see a Dr that understands that pain on a scale of 1-10, mine being at 8 and with the smallest amount of pain meds keeps me at about 4-5 everyday 24/7. Of course that is until I have a flare, and then I have no place to go and no relief in sight.

    Glad I read your posting and I will pass it along to groups that are trying to help each other get through their troubles. Thank you for all the info.

    Respectfully submitted,
    Starr Callies

    • Thanks for your comment. You are right. We got into this epidemic because of one size fits all policies and we probably won’t end up where we need to be unless we are able to fine tune what we do so that people who really need the drugs get them with an appropriate eye on preventing addiction (there are good alternatives for pain to opioids available). That being said, I think you might resonate with this blog from one of our writers who has had more than 40 surgeries and has had so much pain during her life – not that she wrote this 2 years ago before the anti-opioid movement was in full swing: https://thedoctorweighsin.com/chronic-pain-wallops-even-optimist/

  2. Star Callies: I agree with you 100%. I believe the government is playing with statistics to create this so called “Opioid Epidemic”. You cannot group street heroin with opioids prescribed by a Health Care Provider. I would like to know, regarding these opioid overdose deaths involving prescription medications, what the underlying cause was. In other words, if your Provider gives you pain medication, regardless of your age, and you fail to follow the label warnings, or combine those medications with alcohol or other drugs, tell me, how is that anybody’s fault but your own? Logic dictates that cannot be the fault of the Heath Care Provider, yet the government wants to create another crisis, while simultaneously lowering healthcare standards in the U.S., and make it extremely hard to obtain needed medications. All this only fuels the illegal drug trade as people in pain resort to street drugs to relieve their pain. Meanwhile, the government wants to lessen drug offense penalties while hassling our health care providers. Does any of this make sense? I want Uncle Sam OUT of my health care and he can take his electronic medical record system with him.

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