Website: https://birthmark.org/
Linda Rozell-Shannon is the President and Founder of the Vascular Birthmarks Foundation (VBF), the leading not for profit in the world for children and adults affected by a vascular birthmark, anomaly, or syndrome. VBF was founded in 1994, when Linda’s daughter Christine was born and subsequently diagnosed with a hemangioma. There was no internet at the time for everyday use. There was no book on the subject for parents. Physicians were not trained in medical school to treat these lesions. In 1997, Linda became the co-author of the only book for parents on the subject of Vascular Birthmarks, entitled: Birthmarks: A Guides to Hemangiomas and Vascular Malformations. Since then, she has authored or co-authored over 12 medical journals, 3 textbook chapters, and has presented at over 20 conferences worldwide on the subject of vascular birthmarks. She is an avid public speaker concerning this topic and advocates for parents and lobbies insurance companies to cover treatment. Today, Dr. Linda (as she is referred) is considered the leading lay expert in the world concerning vascular birthmarks and anomalies.