Home Authors Posts by Julie Hemker

Julie Hemker

Julie Hemker
28 POSTS 4 COMMENTS
Julie Hemker was born with Sacral Agenesis 42 years ago. She has had over 40 major surgeries, her first at age 1. Julie likes to point out, she is not defined by Sacral Agenesis–her life is so much more than being a patient. Julie is the author of our most enduring series on TDWI, "Living with Sacral Agenesis."
Julie Hemker sacral agenesis

Another Speed Bump in the Wild Ride of Sacral Agenesis

When we last heard from Julie, she was recovering from a complex surgery to relieve severe pain related to complications of sacral agenesis. We are sorry to learn that she once is dealing with severe pain, but as Julie aways says, there is a silver lining - she is once more writing and sharing her story with us.
Julie Hemker sacral agenesis

Life Goes On

Life goes on whether I’m having surgery or not; whether, I’m on bed rest or not; whether I’m in recovery or not. Life zooms...
living with sacral agenesis complications

Sunshine: The Joy of Getting Back to Normal

Time has passed since I last wrote.  Why?  The post-operative phase of this process proves challenging and it will be lengthy.  Funny how I...
Julie Hemker, author of "Living with Sacral Agenesis" series on TDWI

My Life with Sacral Agenesis: Overwhelmed by a PICC Line

An infection after her 49th surgery for complications related to sacral agenesis led to the insertion of a PICC line and a flood of childhood memories.
Julie Hemker sacral agenesis

Time is On My Side, Yes It Is…Living with Sacral Agenesis

Julie Hemker writes about living with sacral agenesis. She's had 48 surgeries to correct the congenital abnormalities and yet she is still smiling.

Eureka! A Surgeon is Found – (aka Julie’s Happy Blog)

This is part of an on-going series of posts by Julie Hemker, a young woman born with sacral agenesis, and her Mom, Charlotte Schild. In...

Oh We’re Not Gonna Take It Anymore…

This is part of an on-going series of posts by Julie Hemker, a young woman born with sacral agenesis, and her Mom, Charlotte Schild. In...
Julie Hemker sacral agenesis

Failure to Transition From Pediatrics to Adult Medicine

When you are born with a birth defect, like sacral agenesis, it can be hard to find an adult doctor to take care of you when you outgrow your pediatrician.

In Chronic Pain and Playing the Waiting Game

This is part 10 of a series of posts by Julie Hemker, a young woman born with sacral agenesis, and her Mom, Charlotte Schild. In...
living with sacral agenesis complications

What its Like to Have a Pediatric Problem in the World of Adult Medicine

Julie describes what it is like to grow up with sacral agenesis, a birth defect that has required multiple surgical interventions. She also tells us what it is like to have to transition from her pediatric specialists to adult care providers not familiar with her medical history.

The Power of Distraction for Chronic Pain

Julie shares how she uses movie therapy to deal with her chronic pain due, in part, to a newly diagnosed heterotopic ossification.

Time Will Tell (What’s Next? Dealing With Sacral Agenesis)

This is part 7 of a series of posts by Julie Hemker, a young woman born with Sacral Agenesis, and her Mom, Charlotte Schild....